The Institute for Health Quality and Ethics

"The mentally retarded have been subject to a lengthy and tragic history of segregation and discrimination that can only be called grotesque….. [a] regime of state-mandated segregation and degradation soon emerged that in its virulence and bigotry rivaled, and indeed paralleled, the worse excesses of Jim Crow.”

- Thurgood Marshall, 1985
 


Our Declaration Of Freedom

Whereas, Individuals with disabilities have to trade their basic freedoms in order to obtain needed supports in the present human service system; and

Whereas, Individuals with disabilities are kept virtually impoverished in the richest human service system in the world; and

Whereas, Individuals with disabilities are often declared "incompetent" and denied even elementary human and civil rights under current guardianship statutes; and

Whereas, Individuals with disabilities are still prevented from working and generating substantial income for themselves;

Therefore, in order to secure equality and obtain basic human and civil rights enjoyed by all Americans, it is declared that all individuals with disabilities, including those with cognitive and other significant disabilities, should receive necessary supports to live meaningful lives in our communities through the Principles of Self-Determination: Freedom to choose where and with whom they will live as well as what important things they will do with their lives; Authority over a targeted amount of dollars sufficient to provide necessary supports; Support that is individually designed to meet the unique needs of the individual with a disability and support from freely chosen family and friends in obtaining and monitoring this support; Responsibility for the wise use of public dollars and for exercising the benefits of citizenship.

In order to accomplish this change the system of long term care must swiftly and carefully change from one where loss of citizenship and basic rights are routine to one that features contractual relationships between all public and private funders of long term supports and individuals with disabilities, rather than with typical provider agencies. For those who need assistance the long term support system of the future will feature budget accounts independent of service provision, independent brokering and support coordination as well as the ability to design individual budgets that can be changed as experience and priorities change for the individual.

The system of the future will feature incentives to earn and pay taxes without loss of needed supports including the right to generate income through small business development and micro-enterprises. The system of the future will feature supported competence rather than judicial rulings of incompetence. In the system of the future all public policy decisions will be developed by equal partnerships among individuals with disabilities, trusted family members and friends and elected and appointed officials.

The system of the future will honor the civil and human rights that all Americans are entitled to by virtue of their citizenship.

The Struggle for Civil Rights (Coming Soon)
The evolution of civil rights for insidividuals with disabilities.
Key Court Decisions (Coming Soon)

Review some of the key decisions in the history of the civil rights movement for individuals with developmental disabilities.

Publications

Writings on the issue of self-determination in the lives of individuals with disabilities.

 




 
 
 
 
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